Bibliotecas PUC-SP - Busca Integrada

Ethically Managing Risks in Global Health Fieldwork: Human Rights Ideals Confront Real World Challenges

Bằng Rachel Hall-Clifford, Robert Cook-Deegan
Xuất bản năm Health and Human Rights (2019-06-01)

Breathing fresh air into the debate: Ventilators and the United States' intellectual property problem

Bằng Theora W. Tiffney, Robert Cook-Deegan, Heather M. Ross
Xuất bản năm Health Policy Open (2022-12-01)

Ethics of Global Health Photography: A Focus on Being More Human

Bằng Aubrey P. Graham, James V. Lavery, Robert Cook-Deegan
Xuất bản năm Health and Human Rights (2019-06-01)

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.

Bằng Mary A Majumder, Robert Cook-Deegan, Amy L McGuire
Xuất bản năm PLoS Biology (2016-11-01)

Global Health Fieldwork Ethics: Mapping the Challenges

Bằng Rachel Hall-Clifford, David G. Addiss, Robert Cook-Deegan, James V. Lavery
Xuất bản năm Health and Human Rights (2019-06-01)

Ethics choices during the Human Genome Project reflected their policy world, not ours

Bằng Jonathan E. LoTempio, Jr., Christopher R. Donohue, Jonathan D. Moreno, Robert Cook-Deegan
Xuất bản năm Cell Genomics (2025-05-01)

Is Bayh-Dole good for developing countries? Lessons from the US experience.

Bằng Anthony D So, Bhaven N Sampat, Arti K Rai, Robert Cook-Deegan, Jerome H Reichman, Robert Weissman, Amy Kapczynski
Xuất bản năm PLoS Biology (2008-10-01)

Perspectives on Genetic and Genomic Technologies in an Academic Medical Center: The Duke Experience

Bằng Sara Huston Katsanis, Mollie A. Minear, Allison Vorderstrasse, Nancy Yang, Jason W. Reeves, Tejinder Rakhra-Burris, Robert Cook-Deegan, Geoffrey S. Ginsburg, Leigh Ann Simmons
Xuất bản năm Journal of Personalized Medicine (2015-04-01)

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

Bằng Mary A. Majumder, Matthew L. Blank, Janis Geary, Juli M. Bollinger, Christi J. Guerrini, Jill Oliver Robinson, Isabel Canfield, Robert Cook-Deegan, Amy L. McGuire
Xuất bản năm Journal of Personalized Medicine (2021-07-01)

Fresh takes on five health data sharing domains: Quality, privacy, equity, incentives, and sustainability

Bằng Christi J. Guerrini, Mary A. Majumder, Jill O. Robinson, Robert Cook-Deegan, Matthew Blank, Juli Bollinger, Janis Geary, Amanda M. Gutierrez, Maya Shrikant, Amy L. McGuire
Xuất bản năm Frontiers in Big Data (2023-02-01)

A survey of U.S. public perspectives on facial recognition technology and facial imaging data practices in health and research contexts.

Bằng Sara H Katsanis, Peter Claes, Megan Doerr, Robert Cook-Deegan, Jessica D Tenenbaum, Barbara J Evans, Myoung Keun Lee, Joel Anderton, Seth M Weinberg, Jennifer K Wagner
Xuất bản năm PLoS ONE (2021-01-01)

Ethical and practical issues associated with aggregating databases.

Bằng David R Karp, Shelley Carlin, Robert Cook-Deegan, Daniel E Ford, Gail Geller, David N Glass, Hank Greely, Joel Guthridge, Jeffrey Kahn, Richard Kaslow, Cheryl Kraft, Kathleen Macqueen, Bradley Malin, Richard H Scheuerman, Jeremy Sugarman
Xuất bản năm PLoS Medicine (2008-09-01)

The Role of Synthetic Biology in Atmospheric Greenhouse Gas Reduction: Prospects and Challenges

Bằng Charles DeLisi, Aristides Patrinos, Michael MacCracken, Dan Drell, George Annas, Adam Arkin, George Church, Robert Cook-Deegan, Henry Jacoby, Mary Lidstrom, Jerry Melillo, Ron Milo, Keith Paustian, John Reilly, Richard J. Roberts, Daniel Segrè, Susan Solomon, Dominic Woolf, Stan D. Wullschleger, Xiaohan Yang
Xuất bản năm BioDesign Research (2020-01-01)

Open science precision medicine in Canada: Points to consider

Bằng Palmira Granados Moreno, Sarah E. Ali-Khan, Benjamin Capps, Timothy Caulfield, Damien Chalaud, Aled Edwards, E. Richard Gold, Vasiliki Rahimzadeh, Adrian Thorogood, Daniel Auld, Gabrielle Bertier, Felix Breden, Roxanne Caron, Priscilla M.D.G. César, Robert Cook-Deegan, Megan Doerr, Ross Duncan, Amalia M. Issa, Jerome Reichman, Jacques Simard, Derek So, Sandeep Vanamala, Yann Joly
Xuất bản năm FACETS (2019-01-01)

Reflections on the cost of "low-cost" whole genome sequencing: framing the health policy debate.

Bằng Timothy Caulfield, Jim Evans, Amy McGuire, Christopher McCabe, Tania Bubela, Robert Cook-Deegan, Jennifer Fishman, Stuart Hogarth, Fiona A Miller, Vardit Ravitsky, Barbara Biesecker, Pascal Borry, Mildred K Cho, June C Carroll, Holly Etchegary, Yann Joly, Kazuto Kato, Sandra Soo-Jin Lee, Karen Rothenberg, Pamela Sankar, Michael J Szego, Pilar Ossorio, Daryl Pullman, Francois Rousseau, Wendy J Ungar, Brenda Wilson
Xuất bản năm PLoS Biology (2013-11-01)

Creating a data resource: what will it take to build a medical information commons?

Bằng Patricia A. Deverka, Mary A. Majumder, Angela G. Villanueva, Margaret Anderson, Annette C. Bakker, Jessica Bardill, Eric Boerwinkle, Tania Bubela, Barbara J. Evans, Nanibaa’ A. Garrison, Richard A. Gibbs, Robert Gentleman, David Glazer, Melissa M. Goldstein, Hank Greely, Crane Harris, Bartha M. Knoppers, Barbara A. Koenig, Isaac S. Kohane, Salvatore La Rosa, John Mattison, Christopher J. O’Donnell, Arti K. Rai, Heidi L. Rehm, Laura L. Rodriguez, Robert Shelton, Tania Simoncelli, Sharon F. Terry, Michael S. Watson, John Wilbanks, Robert Cook-Deegan, Amy L. McGuire
Xuất bản năm Genome Medicine (2017-09-01)

An open toolkit for tracking open science partnership implementation and impact [version 2; peer review: 2 approved]

Bằng E. Richard Gold, Sarah E. Ali-Khan, Liz Allen, Lluis Ballell, Manoel Barral-Netto, David Carr, Damien Chalaud, Simon Chaplin, Matthew S. Clancy, Patricia Clarke, Robert Cook-Deegan, A. P. Dinsmore, Megan Doerr, Lisa Federer, Steven A. Hill, Neil Jacobs, Antoine Jean, Osmat Azzam Jefferson, Chonnettia Jones, Linda J. Kahl, Thomas M. Kariuki, Sophie N. Kassel, Robert Kiley, Elizabeth Robboy Kittrie, Bianca Kramer, Wen Hwa Lee, Emily MacDonald, Lara M. Mangravite, Elizabeth Marincola, Daniel Mietchen, Jennifer C. Molloy, Mark Namchuk, Brian A. Nosek, Sébastien Paquet, Claude Pirmez, Annabel Seyller, Malcolm Skingle, S. Nicole Spadotto, Sophie Staniszewska, Mike Thelwall
Xuất bản năm Gates Open Research (2019-12-01)

BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.

Bằng Melissa S Cline, Rachel G Liao, Michael T Parsons, Benedict Paten, Faisal Alquaddoomi, Antonis Antoniou, Samantha Baxter, Larry Brody, Robert Cook-Deegan, Amy Coffin, Fergus J Couch, Brian Craft, Robert Currie, Chloe C Dlott, Lena Dolman, Johan T den Dunnen, Stephanie O M Dyke, Susan M Domchek, Douglas Easton, Zachary Fischmann, William D Foulkes, Judy Garber, David Goldgar, Mary J Goldman, Peter Goodhand, Steven Harrison, David Haussler, Kazuto Kato, Bartha Knoppers, Charles Markello, Robert Nussbaum, Kenneth Offit, Sharon E Plon, Jem Rashbass, Heidi L Rehm, Mark Robson, Wendy S Rubinstein, Dominique Stoppa-Lyonnet, Sean Tavtigian, Adrian Thorogood, Can Zhang, Marc Zimmermann, BRCA Challenge Authors, John Burn, Stephen Chanock, Gunnar Rätsch, Amanda B Spurdle
Xuất bản năm PLoS Genetics (2018-12-01)